Health Data

2024

The apt use of data for health policies and innovation can enhance access and outcomes. However, the prevalent trend of exploiting personal data collected through digital technologies as economic assets poses risks of surveillance, discrimination, and exploitation.

This policy brief submitted to the T20, anchored by Idec, Brasil and co-…

2022

The National Health Authority (NHA) recently released its Data Sharing Guidelines draft for PM-JAY. The NHA invited responses and comments from the public and as such IT for Change duly sent in its recommendations. While the NHA's proposal is certainly a step in the right direction, there are a few key points that we feel needs addressing.…

2020

The Government of India, through the National Health Authority, released the draft Health Data Management Policy on August 26, 2020. As stated in its objectives, the Policy is meant to act as a guidance document across the National Digital Health Ecosystem (NDHE) and sets out the minimum standard for data privacy…

2020

We are pleased to announce that Fondation Botnar has commissioned IT for Change to develop a framework focusing on ‘Health Data as Global Public Good' that centrally includes community ownership of data into it. The research for this project will lay out the nature, role and governance of health data in the emerging digital society and economy…